The persistent cultural stigma associated with dementia in Pacific communities remains a significant barrier to proper diagnosis and care. In response, a current research project seeks to develop culturally sensitive strategies to combat these misconceptions and facilitate compassionate, informed care.
Under the leadership of Dr. Fuafiva Fa’alau, this Health Research Council-funded study investigates culturally tailored diagnostic methods for dementia within Pacific populations. Scheduled for completion in 2025, the research addresses not only medical diagnostics but also actively works to dispel the notion that dementia is a spiritual curse rather than a recognized medical condition.
“There are no Pacific terms for dementia, and the absence of a specific term contributes to prevailing stigmas and misconceptions.“
The Living with Dementia study highlights the limited understanding of dementia among Samoan and Tongan families. This research adopts methodologies such as community engagement, talanoa, and fa’afaletui to gather narratives and experiences regarding dementia. The project aims to harness Pacific cultural knowledge to create a responsive diagnostic tool that can support clinicians in accurately diagnosing dementia in Pacific communities.